I had the pleasure of speaking with a wonderful soul today. She, too, has a son with Dravet Syndrome. What a comfort it was to speak with someone who truly knew the trials of our plight.
God keeps sending us angels....
I contacted her through her site about her son. She willingly responded with such kindness. It isn't easy for us parents that's for sure, but she took the time and it really helped me today and I'm so thankful.
About Me
- Celestine
- I'm a 33 year old mother of two boys. They are wonderful and I'm lucky enough to stay home with them and watch them grow. I have a supportive and loving husband who has helped me raise them and deal with our younger son's epilepsy. Some days are wonderful and some days are challenging, but everyday is a miracle and a blessing.
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