We finally got a sunny day. A day that was HOT and sunny.
Despite all the chaos our family has had in the past 3 weeks, I just wanted to take a moment and appreciate the near perfect day we had.
Firstly, we all went to bed early last night and had a marvelous sleep. In the morning, I got the kids fed and dressed and Robert was is such a good mood (the first day that you could not see worry all over his face), that he was playing music on the CD player. He chose happy music of nostalgia and played it...loud.
Stefano was a little rowdy with all the commotion, but Tommaso remarkably did not have seizures. I suggested that we go out for lunch today and take a stroll along College St. The feeling I had on our journey was like the days I used to take for granted. The freedom to walk down the street and see your kids and your husband happy and enjoying something so simple brought me joy.
Tommaso went most of the day seizure free. There were a couple of questionable movements, but overall Tommaso looked more alert and was truly with us.
This is the first day we've had like this in a long time. Stefano could even feel that the negativity had lifted. When you're waiting for Tommaso to have a seizure all the time, it's difficult to let loose. Robert and I had great random conversations. It was a nice departure from the serious talk we've had in brief conversations over the phone while I was watching Tommaso at the hospital. We talked today about how some parents complain about how hard it is to have kids. It's amazing how your bar gets raised when you have a child with a challenging form of epilepsy or any illness for that matter. You wish that having the pains of healthy children was your only worry. Not to negate any one person's trials, but I guess there is always a certain perspective to be searched for and viewed.
I'm not going to think about the worries right now however. A little bit of light shone upon us today and I appreciate every minute of it. Praise God for this tiny miracle.
No comments:
Post a Comment